Today was a big day for Louise. First, to see her regular neurologist this morning, then a team meeting at the nursing home/rehab center this afternoon. Once again, I could be a neurologist. “We don’t really know…and time will tell.” I didn’t really expect much different. He said this could be her new baseline, but … Continue reading Big Day

I haven’t had the time to see Louise the past couple of days because of commitments made months ago. When I saw her this morning she was sleeping, still in her clothes from yesterday. I didn’t ask why that was, because I knew she wouldn’t know why. She brightened when she opened her eyes and … Continue reading Constructing Meaning

Went to see Louise today. She was happy to have company. Her roommate is a sweet lady with congestive heart failure. She seems in good condition, she’s in a wheelchair but very coherent, and she is very kind to Louise. She worries about Louise and tries to keep a watch on her. She let me … Continue reading Wierd

I didn’t get a chance to go see Louise today, but I talked to her on the phone. I asked her if she had been to physical therapy today and she said, “I don’t know. I think I have been sleeping all day.” I talked to Ray and he said she had been to therapy. … Continue reading Settling In

Louise was moved today. She is in a nursing home with a rehab unit in hopes that she will recover to where she was before the events of last weekend. At this point, she is on the move. Making us a bit nervous about the possibility she could fall. However, after laying in a bed … Continue reading The Move

Tomorrow is a big day. They plan to release Louise to the nursing home for rehab. It is just in the nick of time too. She decided to get up and go today. She wanted to go outside, walk around the hospital, anything but get in the bed. She was adamant. As far as we … Continue reading Release

Last night, while Louise was feeding herself her first solid food, we got a chance to talk to a different neurologist…the weekend one. He came to check on her at the request of the doctor who has been treating her. In the morning, she had been chatty and, with Ray’s help, called many family members. … Continue reading Weekend Doc

Why is it that health issues always make me feel as if I am on a roller coaster? I go up hills, only to be plummeted down, screaming, trying to hold on to my lunch. Then up I climb before, I am slung around at breakneck speeds holding on for dear life. Why would anyone … Continue reading Roller Coaster

We finally heard from the doctor today, after Bill expressed our extreme frustration with her treatment thus far. The EEG shows some electrical impulses in her brain…not seizures, but the resulting non-responsive spells are similar to an electrical short when the power goes out then back on. Once the power goes back on, the function … Continue reading Good News

Did I tell you or what? “We’re not sure. Time will tell.” I swear I could be a neurologist! They got the results of Louise’s MRI back. No stroke. No tumor growth. We’re not sure. Their best guess at this point is ongoing seizures with unknown cause. They have moved her yet again, this time … Continue reading Did I tell you or what?