Chemo Class

Bill and I went to my chemo class this week.  It was helpful and scary all at the same time.  It was good because it showed me I am not alone.  There are wonderful people there to help us through this difficult stage in the journey.  They are there to answer all my questions and help with practical everyday concerns.  That is a relief to me…an answered prayer really.

The scary part was all the information and possible side effects.  It was sobering.  I mean I know that cancer is serious stuff but this information showed me how serious.  We talked about how to manage physical side effects and how there would also most likely be emotional issues to deal with as well.  I already knew this of course, because I feel totally unstable some days and perfectly fine on others.  It was good to hear the normalcy of that kind of roller coaster. 

Knowing my hair is going to fall out, I tried to imagine what I will look like bald.  After class I went and tried on some hats at a shop in the hospital…that made me cry.  I guess I have had bangs so long I didn’t realize how wrinkled my forehead is!  I felt like Dopey from Snow White, with my big ears and round face.  Funny how something as simple as hair can be such a big deal.  I told Bill I can’t imagine how people that are really into their hair get through this.  As most of you know, my hair is the way it is because it is quick and comfortable, not as much for the look of it.  Now I find that I care more than I thought about the look of it.  That is hard.

I have heard it said by a survivor that loosing your hair is harder than loosing your breasts.  I don’t know about that since I don’t have breast cancer…but I can see how it could be true.  I know it will bother me when it comes out.  I know that I will get by and look at the bright side.  That is my way to cope…but it will still be hard to look in that mirror everyday.

Family

Have you ever sat in a room and observed your family? I am talking about the extended family that you rarely see all together except at reunions, weddings or funerals.  I had the opportunity to observe mine at my grandmother’s funeral earlier in the week.  It brought some interesting thoughts to mind. 

One of the random thoughts flowing through my brain is that you don’t choose your family.  I mean, friends you have because you have some similarity or something in common, therefore they are kind of like you in some way or another.  But you are born into your family.  You would think that being from the same gene pool would make you all alike (more alike than strangers turned friends anyway) but that couldn’t be further from the truth.  There may be some physical likeness but that is where the commonality stops.  In fact, I find myself wondering how did we all come from the same bloodline?  We are as different as night and day.  And have you noticed that every family is this way?  There are tall, small, shy, and funny cousins.  Everyone has at least one crazy aunt or uncle and there are always a couple of black sheep scattered throughout the flock.  Some family members get along wonderfully and others can barely stand to be in the same room together.  It is really a wonder at how this happens so consistently no matter how functional or dysfunctional a family is.

But when there is a need, in this case a death of a loved one, there they all are.  Supporting each other even though they can’t always remember which branch of the tree others come from.  It is a great and wonderful thing to watch.  As I try to explain to my little branches how they fit into this big tree, I find that if any one person is missing the picture is incomplete.  Somehow now that I am a grown up it makes more sense to try to know more about how my family is related.  After all, this week we lost a big branch.  I don’t want to loose her legacy just because she isn’t present here on earth anymore.  It makes her life all the more important to share…so we won’t forget her place in our tree.

You see family is tied together by more than common interests.  We are tied together by blood.  Blood cannot be changed, even if there are times you want it to.  To be in this bloodline is something that I have no control over and yet I wouldn’t have it any other way.  Family is important; it is vital.  God knew that when he created families.  He knew there would be tension sometimes.  He planned the good times.  He was there from the beginning of our families and he chose us specifically to hold up our branch.  The diversity of family personalities was his idea.  The blood connection was his choice for us.  It runs deep.  We can ignore it but we can’t change it.  It is our legacy.  It is His legacy.  His blood covers us all.

Whirlwind days

I have had a couple of whirlwind days...on top of my already whirlwind summer.  First I went to the doctor and she said that my incision is looking great but that she wants a couple of more weeks of healing before we start chemo...so my first session is now scheduled on Sept. 5.  That is a relief to me because of all the overwhelming stuff going on within my family. 

Speaking of...my grandmothers funeral went well.  It was a sweet service that testified of her faith.  Funerals are always bitter sweet to me because you see people you  haven't seen in years but you have to say goodbye to a precious loved one.  It was hard on me physically because of all the standing, sitting and visiting.  Many people already knew my story but many didn't so I had to tell it again and again.  I don't mind but it was very tiring.  We stayed down in Atlanta to give me more rest time.  The kids did exceptionally well.  They were sad and cried some but they talked and visited and were patient with all the relatives that were cheek-pinching.  It was sad as always but they came out of it well. 

After the funeral I had yet another doctors appointment with the surgeon that will put in my port for chemo.  I liked him alot and my surgery is scheduled for Aug. 28th...it is a simple outpatient procedure. Then I came on home to get my wound vac back on...yeah!  Tomorrow I have my chemo class down at Northside for 2 hours.  Friday I plan to sleep for a long time :)  Thanks for all your prayers the past couple of days especially!  I will write my reflections on the funeral in the next few days.

A Tribute

My grandmother’s name was Johnnie Hunter.  I am not sure which of us couldn’t say grandmommie but Memommie became the name we called her.  Memommie was a relatively small boned woman with a deep tan, from walking beaches her whole life.  The beach was one of her favorite places. She had bird like legs, which I didn’t inherit.  Her hair was short and very white.  One of my kids called her the White Memommie and since we had two Memommies (my other grandmother was memommie too) the name stuck.  White Memommie had a great smile and enjoyed being with the grandkids and great grandkids.  She was not very outspoken but cared for us all in her own way.

I only know a little about her childhood in Thomasville, Georgia.  She had four sisters…I think.  It was hard to keep up with all of my great aunts.  She and my grandfather married very young.  Courageously she gave her first child up for adoption because she didn’t believe in abortion. Later they had two children, my dad and my aunt Joanna. My grandfather had a 6th grade education so poverty was real to them until after my father and grandfather began a highway construction business when my father graduated college.  The business went well and by the time I was born, I didn’t hear much about the early days...except for the mustard and onion sandwiches.

I remember when I was little my grandmother and grandfather traveled a lot.  There were stories from exotic places and my imagination would take flight as my grandmother pulled out a doll from some foreign culture.  I used to play with those dolls and pretend I was in the country they came from.  From very early she affected my life by helping me to see beyond my world to other places. I always wanted to go to the places she visited because they sounded like fun.

When we were young my grandparents had a condo right on the beach at Anna Maria Island in Florida and we used to go there every summer. Some of my favorite memories were walking on the beach, picking up shells, swimming in the pool and trying to avoid “old people” that didn’t like the fact that grandkids were roaming the complex.  My grandparents took us out to The Buccaneer Restaurant for clam chowder, ribs and make-it-yourself-sundaes.  The sundaes were my favorite part!

Their other condo was in Atlanta, right down the street from my other grandmother’s house.  We used to walk right down and climb through some bushes to get there.  It was so cool to have both sets of grandparents that close to each other. We could go from one house to the other with ease.

Like all grandmothers, she could cook and enjoyed a party. It was fun to go to her house for special events.  She was most known for her macaroni and cheese, which is still a staple for all family gatherings…though none of us has gotten it exactly like hers we are close.  She also used to make hoecakes; that is cornbread fried in oil, kind of like a pancake. Every year she was hostess to the Hunter family reunion at their house on Lake Lanier.  She would cook and make quite a spread for the whole clan.  Mixing her known greats with the pot luck of the family always left us stuffed and ready for swimming, boating, skiing, and tubing.  White Memommie would just watch from the porch and mix up lemonade as all of the kids enjoyed the day.  I think those were some of her happiest times.

The last few years she hasn’t been in the best of health.  She has been in and out of the hospital regularly.  She was on dialysis for several years because her kidneys failed.  Last December she was doing so well they were able to take her off.  Her attitude was great and she was excited about her miracle as were we all.  It seemed that things were looking up for her health until a month or two ago.  Breathing was labored and her heart wasn’t working well.  She had to be put back on dialysis.  Mini strokes began a downward spiral that led to the doctors sending her home to die.  Those months were difficult to watch.  Now, however, I like to think of her at home with the Lord and with my grandfather again.  They will be so happy to be together again!  I know she was a quiet woman of faith but she loved God.  She would tell me she was praying for me…or that the Lord was working in her life.  She knew him and now she is with him.

 

Death in the Family

I didn't write yesterday because it was a lazy day.  I just slept in and then sat in my chair reading and watching TV.  It was a slow day to be sure.  Now I see the point...my grandmother died this morning at 3:30.  She would've been 90 on Tuesday.  She had a long life and we are grateful that she went quietly at home.  I will be extra busy the next few days between doctors appointments and funeral homes...pray for strength please.  Thanks.

Pearls of Great Cost

I had a better day today.  The dressing change went well which helps my emotional state considerably.  I feel like this thing might actually heal after all!  A better day...

I was looking through some of my previous writings and came across one about Pearls of Great Cost. (Some of you may remember it) I guess I am in the process of getting more pearls!  I thought I would share it with you...it is quite a few years old but still relevant to my life as you will see. 

Have you ever felt like life is a series of traumas and disappointments?  Many people experience pain and heartache.  It is part of life.  Some pain goes away easily and some lingers for long periods of time, and just when we think we are over it something happens and rips the scabs right off of old wounds. Do not loose heart!  Instead of self-pity or blaming those around you take a moment and consider there may be a silver lining to the clouds. 

There is a difference in love and compassion.  The difference is the pain.  God has compassion.  He loves so much it hurts.  In reality, the pain you experience is a lot like the pain in the Father’s heart.  He knows each pain you feel because he feels it too.  The pain is like a pearl…made beautiful through adversity. 

Compassion is what moves him to action.  He is near to the brokenhearted.  So if you’ve been broken and wounded count it all joy!  You have more of the Father’s heart than many.  You carry it with you in your pearls.  Some have long strands of pearls. Some have only a few, but they are valuable because of their great cost.  They cost everything.  The great thing is that as you gather God’s truths through your pain you are being formed in his image.   

I was reading Matt 13:45 where it says the kingdom of heaven is like a merchant looking for fine pearls.  When he found one of great price he went away and sold everything he had and bought it. As I studied this passage I saw it from a different perspective.  I have always thought that I was the merchant and the pearl was salvation. But what if God is the merchant…and you are his pearl of great price?  He saw you being formed through life’s hardships and knew you were of great value, so much so that he gave all he had…the greatest cost of all to purchase a pearl of such value.  So do not dismiss your hardships without seeing your pain through his eyes and getting in touch with his heart.

I have always struggled with the phrase “my sin held him on the cross.”  But if you look at it from the Father’s perspective it becomes easier.  When sin came into the world so did pain and hardship.  Adam and Eve chose it and because of that had to walk in it.  Life became a thing of suffering and pain, far from what was originally intended.  They were separated from God and God was separated from them.  From a distance he watched.  It so grieved his heart to see the pain and yet, because of his perfection, to get close meant certain death for the children he so loved.  Imagine seeing your own children in so much pain and hardship while knowing if you reached out your hand to stop the pain…your children would die.  Imagine the wrestling in his heart and the grief of man’s sin-choice.  His compassion moved him to do something.  He had to be near and to help. So he became a man…Jesus.  And at the cross took all the suffering and pain on himself; the ultimate suffering unto death.  And in and through that pearl of great price we have the ability to be with him once again; to be close with no separation.  It was the suffering and pain, the result of our sin, which held him there.  He couldn’t stand to watch it.  In his compassion, he had to move to do something to alleviate our pain.  So when you suffer hardship, loss and grief know that he sees and has already made provision.  It was that very pain he took upon himself so you could be free.  He is our pearl of great price and we are his.  He willingly paid it all because he saw such value in you.  He couldn’t stand to see you hurting anymore.  And if we look through that pearl of great price, we see his love and compassion for us.

 

I am tired

Today I am tired.  I don't know why it seems so hard to get up but I am struggling.  I still have quite a bit of pain because of the reaction to the tape and it is annoying and uncomfortable.  I have good days and bad ones.  Today was a sad one for some reason.  Bill thought I needed to get out of the house so he took me out for dinner.  It was nice and I was able to perk up.  It just seems like this is taking forever...it feels like it has been months since I got this vac and longer than that since I had my surgery.  It has only been a couple of weeks and I have so much more stuff to go through.  I wonder today if I have it in me.  My energy is so low already...and tomorrow the nurse comes again.

Update: Peter's surgery went well.  He is sore and will be home for a couple of days but his teeth came out easily with only a few stitches needed.  It was good to snuggle up and nap together today.  That was the good part of the day 🙂

Also check out my pictures.  Look at the sidebar where it says albums...a view from my chair.  I can't figure out how to post the titles of the pictures...I am still finding my way around.

Family Update

Today I wanted to update you on our family events...

My mom is recovering well from her hysterectmy.  All of her pathology looked good.  She is progressing and well on her way to recovery.  That is a blessing to me.

My grandmother has been placed with hospice.  We knew it was coming but the timing is difficult.  Yesterday the doctors said she may have a week or 10 days.  This is hard for all of us.  I think we didn't realize how soon things would come to the end.  I am particularly concerned about my dad.  He has been so busy with me and my mom I don't think he saw this coming.  Prayers are welcome for us all.

Bill's mom is having her last radiation treatment tomorrow!!  Yeah.  At least one part of this story is coming full circle. 

Peter has oral surgery tomorrow.  He is having six teeth removed because they are fused to the bone!  I told him he could come home and hang out with me and we will recover together.

My next dressing changing is Friday morning.  I am keeping my hope that it will go as smoothly as last time.  I would still like to be finished with this incision but I am willing to walk through it now.

I am blessed by all of my supporters...please continue to pray as the Lord leads you.  It seems to me that even in my resting place I am busy...how can that be?  I guess it shows you that life keeps moving even when you are standing still.

Sweating Drops of Blood

Today the phone rang and it was the nurse.  She wanted to come change my dressing today instead of tomorrow because the more days in between the more pain there is.  I was all for it, while at the same time being against it.  I went into the panic/meltdown mode that I have been living in lately.  I took all my pain medicine that is supposed to help me.  I cried and had trouble breathing as I waited for my pain to arrive.  Somehow the anticipation of pain is bigger than the pain itself.  Bill played the piano over me.  That brought me peace and I was able to take deep breaths once again.  As I tried to rest while waiting on my agony this passage from Luke came to mind.

 

He began to be sorrowful and troubled.  Then he said to them, “My soul is overwhelmed with sorrow to the point of death.  Stay here and keep watch with me.”  Going a little further he fell with his face to the ground and prayed, “My Father, if it is possible, may this cup be taken from me…yet not as I will, buy as you will.”  An angel from heaven appeared to him and strengthened him.  And being in anguish he prayed more earnestly and his sweat was like drops of blood falling to the ground.

 

I understand this passage a little better now.  I was sweating (not blood) as I knew the pain that awaited me.  I knew there was no way around it.  I even asked God to let this cup pass from me…but he didn’t. I felt a small part of the anguish and sorrow he must have felt.  I am relieved that I have a savior that has felt everything I will ever go through…even pain.

 Again I am reminded of Christ’s love for me.  He was in anguish because he knew the pain and torture that was to come. He knew the rejection and the physical beatings.  I cannot imagine the depth of the pain he felt.  He chose to face it because he also knew the end result would be intimate fellowship with me….with all of us.  He thought it was worth it…I was worth it.

In the end today, I was blessed.  The Vaseline gauze worked and the foam was removed fairly easily.  Some pain but very little and I have hope that it will continue to be as easy now that we have found the trick.  I am still somewhat nervous for next time because it is always tender.  But God moved today on my behalf.  He knew how much I could take and he did not require more.

Pain

        Here I am with all the pain that I can stand, actually more than I can stand.  I am wondering at the purpose of this kind of pain in my journey.  To me it seems torture but I am trying to look beyond that most surface level. If you have read my writing at all you know that I see spiritual principles in natural events, like a metaphor.  I am looking at this wound and how it broke open and must now heal from the inside out and I am seeing a broader principle in action.  If we have a wounded heart, (I believe that we all do whether it is our emotional, physical or spiritual heart) what can this pain of mine teach. 

        First of all, ignoring it is impossible.  You and I have both known people (and possibly been people) that have tried to ignore the gaping hole in their hearts.  The world doesn’t realize how much that kind of wound shows and how serious it is. It doesn’t matter if it is a lack of salvation or some life trauma, the wound shows even when we don’t think it does. 

        Second, a band aid won’t work. It isn’t a surface scratch.  It is deep and therefore significantly affects other areas of life.  We try to work around it but it is useless. Simply covering this open wound is an invitation to infection.  If it gets infected it will fester and affect every part of your body…or in this case your spirit.

        Third, you have to be aware of this wound.  It hurts but will become even bigger if ignored.  This includes emotional wounds as well as spiritual, and usually those two are connected. If it has been ignored for years, when it breaks open it is a surprise.  The urgency becomes obvious as the pain increases.  Everything in your life stops suddenly as you frantically try to attend the problem area.

        Fourth, it has to heal from the inside out.  This is a big one for me.  I cannot simply sew this hole up.  It will not heal properly.  Now that it is open I have to wait and let it heal fully from the inside.  That is true of all kinds of hurts. If pain is deep it has to be healed deep.  To fight that healing is to ask for trouble.  But sometimes, to invite new growth old dead tissue has to be removed.  This is my torture…and so it is with other types of wounds as well. We don’t want to go into the depth and the removal of the junk because that is where the big, really bad pain is.  We want to quit, and avoid it at all costs. I can personally vouch for that.  It is hard to look at past hurts; a bad divorce, childhood abuse, a terrible disease, a death of a loved one, the list goes on and on.   Getting through the trauma or hurt can seem like a slow and painful process but in the end the healing that is gained will be worth it. 

        Christ is familiar with pain.  That is why he is so powerful in our healing process.  He knows every tear I have shed.  He has not abandoned me and he will not. Philippians 3:10 says “I want to know Christ and the power of his resurrection and the fellowship of sharing in his sufferings, becoming like him in his death, and so somehow, to attain resurrection from the dead.”  I am waiting on the resurrection part of this passage.

        My pain also gives me a huge teary eyed feeling of what the Lord suffered.  I have one nerve exposed and I am at the end.  How much more did he endure for me.  That cannot be understated to me right now.  He suffered more pain that I am in...all for me...because of his love.  I cannot comprehend how much love that must be. If I could take myself out of this healing process I would do it in a heartbeat...but he could take himself out and didn't.  That speaks volumes to me on this day!

 Once my healing is complete I will have more compassion for others.  I look through new eyes to those around me that are in crisis. I am gaining a new perspective on people that are suffering.  I look at the pictures on TV of the people in the bombings and wonder how they get through it.  What I am going through is in my nice air conditioned house with my supportive friends right along side.  They are blown away in the streets in total chaos. Things could be worse for me.  They can always be worse and it helps to remember that in the darkest moments with the most pain. So even from my chair I am learning and growing and healing.  God is very much in the process and he is softening my heart to form it more like his own.  Now if I can just get through it!